Amalia Ibragimova (SMA-1) - Uzbekistan is with you / Узбекистан с тобой! (with Russian subtitles)
Ways to help are below/ Все реквизиты в описании/ Hamma ma'lumotlar pastda Это видео было создано 15 марта 2023 года. Amalia Ibragimova was born on November 29, 2021 in Tashkent, Uzbekistan. At the age of 8 months she was diagnosed Spinal Muscular Atrophy Type 1 (SMA-1). Being also called Werdnig-Hoffmann disease, it is a severe form of the disorder with muscle weakness evident at birth or within the first few months of life, which can lead to inability to even breathe. Amalia urgently needs to receive the Zolgensma Vaccine before she turns 2 years old in order to stay alive. Zolgensma is proven to stop the development of the disease and its price is now lowered to $2 125 000. It is not affordable for the family and also is not provided by the government. Please help Amalia! GoFundMe in Europe (Euros): 💫 https://gofund.me/eeed6ad9 GoFundMe in the USA (Dollars): 💫https://gofund.me/043eb7c4 VISA: 4023060236264478 Venera Ibragimova ZELLE: by email Llewellys@icloud.com in the name of Alisher Azimov Other bank details for transfers from Uzbekistan, Kazakhstan and other countries: 🇺🇿 UZCARD: 8600490438960718 Venera Ibragimova 🇺🇿 UZCARD: 5440810005940001 Venera Ibragimova 🇺🇿 HUMO card: 9860270108841296 Venera Ibragimova 🇰🇿 KASPI GOLD (Kazakhstan): 4400430207183101 Venera Ibragimova 🇷🇺 SBERBANK (with a note: FOR AMALIA): 2202206148357200 Evelina Ibragimova (Aunt) Ways to contact: Email: amaliaibragimovasma1@gmail.com Facebook: https://www.facebook.com/jiznamalii Instagram: https://www.instagram.com/jizn_amalii... Telegram of Mother Venera Ibragimova: @Ven_ibr Telegram of Father Radik Ibragimov: @a9999999000 Crowdfunding funds collection: Telegram group: @jiznamalii Telegram channel: @jizn_amalii #sma #save_amalia #amailiaibragimova #jiznamalii #zolgensma #saveamaliya #сма #сма1 #золгенсма #saveamalia #helpamalia #helpamaliya
Ways to help are below/ Все реквизиты в описании/ Hamma ma'lumotlar pastda Это видео было создано 15 марта 2023 года. Amalia Ibragimova was born on November 29, 2021 in Tashkent, Uzbekistan. At the age of 8 months she was diagnosed Spinal Muscular Atrophy Type 1 (SMA-1). Being also called Werdnig-Hoffmann disease, it is a severe form of the disorder with muscle weakness evident at birth or within the first few months of life, which can lead to inability to even breathe. Amalia urgently needs to receive the Zolgensma Vaccine before she turns 2 years old in order to stay alive. Zolgensma is proven to stop the development of the disease and its price is now lowered to $2 125 000. It is not affordable for the family and also is not provided by the government. Please help Amalia! GoFundMe in Europe (Euros): 💫 https://gofund.me/eeed6ad9 GoFundMe in the USA (Dollars): 💫https://gofund.me/043eb7c4 VISA: 4023060236264478 Venera Ibragimova ZELLE: by email Llewellys@icloud.com in the name of Alisher Azimov Other bank details for transfers from Uzbekistan, Kazakhstan and other countries: 🇺🇿 UZCARD: 8600490438960718 Venera Ibragimova 🇺🇿 UZCARD: 5440810005940001 Venera Ibragimova 🇺🇿 HUMO card: 9860270108841296 Venera Ibragimova 🇰🇿 KASPI GOLD (Kazakhstan): 4400430207183101 Venera Ibragimova 🇷🇺 SBERBANK (with a note: FOR AMALIA): 2202206148357200 Evelina Ibragimova (Aunt) Ways to contact: Email: amaliaibragimovasma1@gmail.com Facebook: https://www.facebook.com/jiznamalii Instagram: https://www.instagram.com/jizn_amalii... Telegram of Mother Venera Ibragimova: @Ven_ibr Telegram of Father Radik Ibragimov: @a9999999000 Crowdfunding funds collection: Telegram group: @jiznamalii Telegram channel: @jizn_amalii #sma #save_amalia #amailiaibragimova #jiznamalii #zolgensma #saveamaliya #сма #сма1 #золгенсма #saveamalia #helpamalia #helpamaliya