Beyond the Rare： The Future of Surgery and Science in Pheochromocytoma-Paraganglioma Management
Special thanks to the AAES Patient Advocacy Committee for joining us and putting together this panel for the Pheo Para Alliance's 6th Annual Awareness Week! Topics include: *Lessons from Patients: Recognizing the Misunderstood: Discussion of non-specific and unrecognized symptoms, future directions for awareness and education *Perioperative Standards and Controversies: Traditional approaches to preoperative preparation (alpha-blockade, blood pressure control), postoperative management and follow up (inpatient vs. outpatient; ICU; lessons from expert centers); discussion of research on avoiding preoperative blockade *Imaging Innovations and What’s on the Horizon: Established modalities (MIBG, CT, MRI) and their limitations; Cutting-edge nuclear medicine and functional imaging *Emerging Treatments and Surgical Advances: Minimally invasive and robotic approaches (cortical-sparing); role of surgery in metastatic disease; novel systemic therapies *The Future of Genetic Testing in Pheo Para: Current recommendations and precision medicine (tailoring care to molecular profiles) *“Where Do We Go From Here?”: The role of patient partnerships and advocacy; Audience Q&A Moderators: Dr. Iuliana Bobanga, Patient Advocacy Committee Dr. Joana Ochoa, Patient Advocacy Committee Panelists: Dr. Electron Kebebew, Stanford University School of Medicine Dr. Cortney Lee, University of Kentucky School of Medicine Dr. Marybeth Hughes, Eastern Virginia Medical School of Old Dominion University
Special thanks to the AAES Patient Advocacy Committee for joining us and putting together this panel for the Pheo Para Alliance's 6th Annual Awareness Week! Topics include: *Lessons from Patients: Recognizing the Misunderstood: Discussion of non-specific and unrecognized symptoms, future directions for awareness and education *Perioperative Standards and Controversies: Traditional approaches to preoperative preparation (alpha-blockade, blood pressure control), postoperative management and follow up (inpatient vs. outpatient; ICU; lessons from expert centers); discussion of research on avoiding preoperative blockade *Imaging Innovations and What’s on the Horizon: Established modalities (MIBG, CT, MRI) and their limitations; Cutting-edge nuclear medicine and functional imaging *Emerging Treatments and Surgical Advances: Minimally invasive and robotic approaches (cortical-sparing); role of surgery in metastatic disease; novel systemic therapies *The Future of Genetic Testing in Pheo Para: Current recommendations and precision medicine (tailoring care to molecular profiles) *“Where Do We Go From Here?”: The role of patient partnerships and advocacy; Audience Q&A Moderators: Dr. Iuliana Bobanga, Patient Advocacy Committee Dr. Joana Ochoa, Patient Advocacy Committee Panelists: Dr. Electron Kebebew, Stanford University School of Medicine Dr. Cortney Lee, University of Kentucky School of Medicine Dr. Marybeth Hughes, Eastern Virginia Medical School of Old Dominion University