Ehlers-Danlos Syndrome (EDS) Patient Q&A

I hope you enjoy this Q+A about my journey with Ehlers-Danlos Syndrome! Here are the questions answered if you'd like to skip ahead :) What is EDS? (0:33) What type of EDS do you have? (1:29) How did you get diagnosed? Did you have to travel out of state to get a diagnosis? (1:47) How did you feel after you got diagnosed? (2:10) Earliest signs of EDS in childhood/symptoms? (2:50) Does anyone else in your family have an EDS diagnosis or symptoms? (4:10) What was your score on the beighton scale? (4:47) What comorbid conditions do you have? (5:08) Which EDS comorbidity would you get rid of if you could one? (5:47) Why is it important to get diagnosed with EDS if there is no treatment/cure? (6:07) Do you have a lot of dislocations? (7:07) Outside of joint issues, how does EDS most affect you? (7:40) What are some of your most problematic joints (not the spine)? (8:10) Do you see EDS as a blessing? If so, why? (9:18) What’s one of the hardest things about having EDS? (10:45) Has PT helped with your overall pain? (12:09) How does MCAS affect you? (13:03) What are some things that make living with EDS easier? (13:36) Worst/least favorite symptom? (14:18) Did you get DNA testing or clinical eval? (14:53) Advice for nurses caring for EDS patients? (15:10) What advice would you give to someone newly diagnosed? (15:32) ------------------------- Things/products I have found useful during my chronic illness journey ❤️️ → DNRS Program (Brain Retraining): https://retrainingthebrain.com/?wpam_id=104 Low-Histamine Meats: https://www.whiteoakpastures.com/?rfsn=6527073.0053413 (15% off code: FUSEDWITHLOVE) Redmond's Real Salt/Electrolytes: https://shop.redmond.life/discount/RIBEYERACH?redirect=%2F%3Fafmc%3DRIBEYERACH (15% off code: RIBEYERACH) Amazon favorites: https://www.amazon.com/shop/gonnetopots My etsy store → https://www.etsy.com/shop/FusedWithLoveCo My instagram → https://www.instagram.com/gonnetopots/ My blog → https://gonetopots.com My facebook page → https://www.facebook.com/gonetopots.rachael My twitter → https://twitter.com/gone_to_pots Some of the links in the description may be affiliate links! This basically means that if you purchase something through the link, I might receive a small commission (at no extra charge to you). Thank you so much for supporting my channel! 🎗 #EhlersDanlosSyndrome #ChronicIllness