Rare but Resilient： Sharing Our One-in-a-Million Paths

In this panel discussion, moderated and led by our dedicated Awareness Week Committee Member Sumi Bose, we explore our panelists’ journeys of self-advocacy, the symptoms that pushed them to seek answers, and the power of coming together as a community. We are also honored to have Dr. Tanaz Vaghaiwalla and Dr. Mark Jara join us to provide their perspectives as healthcare providers!